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Welcome to the new and improved website for the California Coalition for PKU and Allied Disorders. We're glad you're here! Please excuse the dust as we're still under construction.
California Coalition for PKU and Allied Disorders is a group of parents, professionals and indiviuals with metabolic diseases dedicated to supporting, educating and inspring others on the same journey. Please have a look around our new and ever improving site, and feel free to EMail us with any comments or suggestions.
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The National Society for Phenylketonuria
Click on the link below to go to the new website.
www.nspku.org
If you have come to this page from another site, please either contact the webmaster of that site or
contact the NSPKU webmaster with details of which website you have come from.
Please update your favorites to link to the new website.
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Home
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Recipes Recipes for Taste and Health
My son was diagnosed with Homocystinuria at the age of 2 . He has been on low-protein diet since that time. Over the past 16 years (he is 18 now), I have been making many mouth-watering recipes for him. I have summarized many successful and sumptuous recipes in this website. I have tried to use food products available readily so the thought of preparing a low protein meal is not daunting anymore. This is just a ...
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Saturday, June 10, 2006
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Do you have questions about PKU? Are you a student doing a research project on PKU? Please feel free to send me an email. I typically get 3-4 emails per week from people asking me various questions about my PKU and I always try to respond to them in a prompt manner.
What is PKU?
My Life With PKU
Some Basic Genetics Pertaining to PKU
Some of My Favorite PKU Recipes
My PKU Penpal Page
PKU News Link:
All you ever wanted to know about PKU but were afraid to ask... What it is, how it affects those of us that have it, and what is done to treat it...
This site has been selected as a featured site in the Lightspan StudyWeb as one of the best educational resources on the Web for information on Phenylketonuria
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PKU Organization of Illinois
Welcome to www.pkuil.org! The purpose of this web site is to be a resource for families in Illinois and around the world dealing with Phenylketonuria. The PKU Organization of Illinois is a not-for-profit membership organization for the benefit of patients and families. The organization was founded in 1969. We would like to hear your suggestions.
Our Content:
Board of Directors: Officers, Commitees and Meeting Information
Our Mission
Organization By ...
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Nederlandse versie
PKU diet management program for Windows -- It's FREE !!
With the help of this program it is easy to determine the phenylalanine content of food. It is primarily developed as a tool for people who do not have the daily care of (small) children, like family and friends. The program is kept simple to use. Currently, there is a Dutch version as well as an English, an Austrian, and an Italian version. The Dutch version has a database with over 600 products ...
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LOW PROTEIN COOKING CLASS RECIPES
To See the Recipes Click on any of the Items Below:
Bagels
Biscuits
Portobello Chili
Tortilla Chips
Chocolate Peanut Butter Pie
Ice Cream
SPONSORED BY:
Applied Nutrition
Mead Johnson Nutritionals
Menu Direct
Publix of Tampa Palms
Ross Metabolics
Scientific Hospital Supplies (SHS)
Tampa Children's Hospital at St. Joseph's
Tampa Palms Golf and Country Club
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Mayonnaise & Salad Dressing
Handy Hint
Vegetable kebabs make a quick low protein meal.
Also very popular with the family, (and low in protein) is homemade ratatouille.
Mayonnaise - With Crudites
Low protein mayonnaise is quickly and easily made using Rite-Diet Egg White Replacer - see instructions on the tub. You can flavour the mayonnaise with chopped garlic, spring onion, curry powder etc. to make a tasty dip, and serve it with crudites - a selection of raw vegetables such as m ...
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Phenylketonuria (PKU)
What is PKU?
PKU, which stands for Phenylketonuria, is an inherited metabolic disease (also called an inborn error of metabolism) that leads to mental retardation and other developmental disabilities if untreated in infancy. With an inborn error of metabolism, the body is unable to produce proteins or enzymes needed to convert certain toxic chemicals into nontoxic products, or to transport substances from one place to another (Glanze, 1996).
The body's inability to car ...
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Minnesota Families:
click here for information about
PKU related events in the Minnesota area,
clinic news, and other announcements
The Basics- Nuts and bolts of PKU
Genetics of PKU
Diet questions answered
Low PHE recipies
Pregnancy and PKU
Telling others about PKU- Personal stories
University of Minnesota PKU Program
University of Minnesota PKU Foundataion
Links to info about college, jobs, and independent living
Links to other PKU websites
Recent additions/updates:
more recipies
Molly and Peter's stories
Minnesota page
Copyright © 1998, All rights reserved.
Updated 09/16/2001 by Dorothy Markowitz
Written and Designed by Leigh Anne Flore
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What is the diet for PKU?
What is PKU? | How is PKU Monitored?
What's Included | What's Not Included | How is this enough? | Duration of Diet
What is Included in a Low Phenylalanine Food Pattern?
The diet for PKU consists of a phenylalanine-free medical formula and carefully measured amounts of fruits, vegetables, bread, pasta, and cereals. Many people who follow a low phenylalanine (phe) food pattern eat special low protein breads and pastas. They are nearly free of phe, allo ...
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Wheat-free Baking Recipes
Catriona Mackey, Marion Bowles, and Jack Campin
This is the result of a recipe evaluation done by Catriona Mackey while on placement from Queen Margaret College under Marion Bowles. Editing and HTML by Jack Campin. This has been used by a number of Marion's patients since the original testing.
Gluten-free recipes are marked as GF in the title. Note that many gluten-intolerant people should also avoid dairy products; recipes using these are not marked. Baking po ...
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